By Greg
Being a carer can be like being on a roller coaster, it can be fun, and thrilling, and downright scary. Sometimes it’s all those things at once. And once you are on it it can be very hard to get off. But then again, sometimes you don’t want to get off, you just want it to go on and on as long as possible.
In this Post I will try to pass on some of my experience gained … Read the rest ... “Carer things that worked for Greg – the good, the bad and the ugly”
Intro and extra clarifications by Greg, the rest by Tren
As I’ve said previously … In Trenna’s iPad she has written summaries of each year. As you will see from what she has written she has gleaned the information retrospectively from a wide range of sources.
As I reproduce them on this site I’ll take the opportunity to clarify and expand on some of the stories. Trenna wrote these summaries (and there … Read the rest ... “1989”
In Trenna’s iPad she has written summaries of each year. As you will see from what she has written she has gleaned the information retrospectively from a wide range of sources.
As I reproduce them on this site I’ll take the opportunity to clarify and expand on some of the stories. Trenna wrote these summaries (and there are many of them) to help her and I recall our many experiences. It was probably … Read the rest ... “1988”
By Greg
If this post interests you there have been three others on this topic. All with things that Trenna tried to help her or my life as we coped with her multiple medical conditions.
I don’t think for a moment that every tip or anecdote will be useful, but I certainly am hoping that people living with chronic illness or … Read the rest ... “Marfan and Other Chronic Conditions – Things That Worked for Trenna – Part 4”
By Greg
If you find this post useful or interesting you might want to check out two other posts: Marfan and Other Chronic Conditions – Things That Worked for Trenna; and Things That Worked for Trenna -Part 2.
As the name suggests yet another instalment in a series of posts that tell the things Trenna tried in an effort to make … Read the rest ... “Marfan and Other Chronic Conditions – Things That Worked for Trenna – Part 3”
PLEASE READ THIS FIRST – THIS POST IS NOT MEDICAL ADVICE
The following historical information is for interest only. It should in no way be thought of as medical advice applicable to any other individual. Medical science has moved on, and no two people have the exact same medical circumstances. I hope you find the information interesting, To see the “Introduction” to this series of posts, please click here.
Common abbreviations used by Trenna in this … Read the rest ... “Medical Records – Cardiology No. 6”
Pain relief and the hope of maintaining some sort of body condition were the two main motives for Trenna doing exercises.
When she was able she would walk and exercise daily, and she was very disciplined at it. In the last two years of her life it was very hard to do much physical exercise at all, and I think she quietly grieved … Read the rest ... “Trenna’s Marfan Exercises”
By Greg
As I hope you know, one goal of this website is to get you to know Trenna a little better. So, I thought I’d provide some insights into the things Trenna liked to drink.
It would have been 1986 or 1987 when I first met Trenna, and it was in a downstairs bar called Cine Cellars near the corner of Hay and Barrack Streets in Perth city. She would regularly go there … Read the rest ... ““Better than sex” – Earl Grey and Other Favourite Drinks”
Introduction by Greg and then Trenna’s words, with only a little editing
The inverted commas in the title were in the original document. A “Body Migraine” is a Trennaism. In this case the term she used to describe this set of symptoms.
This is another post that I am including mainly for the benefit of those with musculoskeletal issues. That of course incudes those, like Trenna, with Marfan Syndrome.
Trenna’s words below were on her iPad. It looks like … Read the rest ... ““SCOLIOSIS BODY MIGRAINES” ”
PLEASE READ THIS FIRST – THIS POST IS NOT MEDICAL ADVICE
The following historical information is for interest only. It should in no way be thought of as medical advice applicable to any other individual. Medical science has moved on, and no two people have the exact same medical circumstances. I hope you find the information interesting, To see the “Introduction” to this series of posts, please click here.
Common abbreviations used by Trenna in this series:
AF – Atrial … Read the rest ... “Medical Records – Cardiology No. 3”
PLEASE READ THIS FIRST – THIS POST IS NOT MEDICAL ADVICE
The following historical information is for interest only. It should in no way be thought of as medical advice applicable to any other individual. Medical science has moved on, and no two people have the exact same medical circumstances. I hope you find the information interesting, To see the “Introduction” to this series of posts, please click here.
Common abbreviations used by Trenna in this series:
AF – Atrial … Read the rest ... “Medical Records – Cardiology No. 2”
PLEASE READ THIS FIRST – THIS POST IS NOT MEDICAL ADVICE
The following historical information is for interest only. It should in no way be thought of as medical advice applicable to any other individual. Medical science has moved on, and no two people have the exact same medical circumstances. I hope you find the information interesting, To see the “Introduction” to this series of posts, please click here.
Common abbreviations used by Trenna in this series:
AF … Read the rest ... “Medical Records – Cardiology No. 1”
I’ve tossed around in my head what to do with Trenna’s extensive medical records.
They mainly comprise the detailed notes she would make at the end of almost all consultations with medical professionals. At first she hand wrote them on A5 pieces of paper (actually hand written on the back of bits of paper that otherwise would have ended in the recycling bin).
Later she recorded them on her … Read the rest ... “Introduction to The Medical Records”
This wasn’t the first time that it was suggested that Trenna might need to see a psychiatrist. See also this anecdote from when she was a child.
The recent post “The Key to Happiness and Fulfilment” got me thinking of a visit to Trenna’s cardiologist, which ended up turning into a trip to see a psychiatrist. Here’s what happened…..
It was Monday, 12 June 2017 at 9:30am (actually from about this point we never made appointments, … Read the rest ... “A Trip to the Psychiatrist”
By Greg
This is the second part of this list. For the first part please click here.
I’m already working on part 3 as things we have done in the past pop randomly into my scone.
As you will find out by going through this … Read the rest ... “Things That Worked for Trenna -Part 2”
[Note from Greg: I don’t think for one moment that when Trenna prepared this piece on her iPad that she just added a nice picture to the top. I think the fact that she is standing on an island (Staten), with the rest of the world behind her (New York City) is entirely deliberate and relevant.]
Trenna became aware at some point around 2010 that she was getting out of the house less and less – it was often pretty hard. But she didn’t want to lose touch with the city in which she lived. And she wanted some recreation and a change of scenery.
So, she invented the “Recce-Vite”. She was using French words to describe a quick look around somewhere.
A recce-vite was … Read the rest ... “The Recce-Vite”