Among the documents on Trenna’s iPad there are two called “Weekly Routine”. One is labelled “2016” and the other “2017”.<\/p>\n\n\n\n
It is actually not quite as pernickety as it seems.<\/em><\/strong><\/p><\/blockquote><\/figure>\n\n\n\n
In this post I will reproduce both of them. In them Trenna goes into immense detail abut times she intends doing things and what looks like a very strict routine.<\/p>\n\n\n\n
It is actually not quite as pernickety as it seems.<\/p>\n\n\n\n
Firstly, Trenna was fully aware that from day to day she never knew what life, or her body would throw at her. Yes, she had a routine, but she knew that if her body let her down, or circumstances changed she would have to, and did, adapt.<\/p>\n\n\n\n
Secondly, I believe the detail is there to ensure that Trenna could maximise her potential and maximise her contribution to the household and our relationship.<\/p>\n\n\n\n
And, I also think that she listed all the things she could do in a week to confirm to herself that despite her trials and tribulations, and her disabilities she actually could achieve quite a lot.<\/p>\n\n\n\n
I think documents like this, which of course were only meant for her private use, just provided a small degree of control into her life. As she says at the start of the first document “I have about 6 hours to do what I have to do, to feel ABLE.”<\/p>\n\n\n\n
I hope you will find reading them as fascinating as I do.<\/p>\n\n\n\n
<\/p>\n\n\n\n
<\/p>\n\n\n\n
2016<\/strong><\/p>\n\n\n\n
WEEKDAY ROUTINE + Daily Extras<\/h3>\n\n\n\n
Revised 22\/3\/16<\/em> <\/p>\n\n\n\n
My “Working Hours” 8:00 – 5:15 pm Each working hour = about 45 mins for me, so I have about 6 hours to do what I need to do, to feel ABLE!<\/strong><\/p>\n\n\n\n
MY DAY BEGINS:<\/strong> 6:45<\/strong> Greg wakes me, I get up, dress, do 4 min eye-lids hot flannel & massage, wash face, eye exercises & eye drop in right eye. 7:15<\/strong> Breakfast + Heart + Osteo pills 7:40<\/strong> We wander around & check the garden together, do teeth. 8:00<\/strong> I pack fruitcake for Greg. I tidy the lounge & dining table, clean coffee machine. I try to see Greg off to work before 8.15 8:15<\/strong> I do hand dishes, clean kitchen bench tops, make bed. 8:30 PAPERWORK:<\/strong> Check & update diary & calendar, emails & fb, send or reply to posts etc. & sort\/do other paperwork, attend to appointments 9:00<\/strong> Go for 30 minute walk around suburb 10:00<\/strong> (1) FRENCH READ\/GRAMMAR:<\/strong> 40 minutes <\/p>\n\n\n\n
Laptop, Lectopia, CD (iPad – Music, iBooks) 10:45<\/strong> MORNING TEA BREAK Banana, morning tea, maybe watch French TV News. 11:00<\/strong> (2) FRENCH NEWS – WATCH\/LISTEN\/REPEAT:<\/strong> 40 mins 11:45<\/strong> 30 minute OSTEO Exercise Program – Floor, Sit, Stand, Balance, Stretch, Strength 12:15<\/strong> (3) FRENCH WRITE:<\/strong> 40 minutes of – Laptop, Lectopia, CD 12:45<\/strong> Pills 1:00<\/strong> LUNCH BREAK 2:00<\/strong> (4) FRENCH SPEAK:<\/strong> – iPad & relax as I go. Allow time for, or make friend calls 3:00<\/strong> Do current project or hobby 4:00<\/strong> Shower, catch breath & rest after shower 4:30<\/strong> Work on current project &\/or house-work 5:15<\/strong> KNOCK OFF<\/strong>, relax play WWF 6:00<\/strong> Greg usually arrives home now. Heart pills & eye drops + We both have a breather. 6:30<\/strong> Check TV – record, delete, add, alter times of programs – watch TV news 7:15<\/strong> Dinner + Osteo Pills + chat catch-up with our day 8:15<\/strong> Watch TV (Mostly sitting but must get up & move from time to time) 9:45<\/strong> Take Pain Management pills 10:45<\/strong> Do teeth, go to bed! DAILY EXTRAS<\/strong> 1) MONDAY<\/strong> Washing day – All Morning. Do 3 washing loads, more is too much. Top-up soap & moisturiser pump packs 2) TUESDAY<\/strong> Tumble dry towels, sort & put away washing. ** After dinner, choose take-away or restaurant for Wednesday. FORTNIGHTLY<\/strong> 1 fn – 30 min (5 buckets) Liquid feed garden 1 fn – 30 min dust, wipe surfaces, dry mop floor boards & little vac kitchen, bathroom, toilet, laundry 1 fn – Dinner menus + shopping list. ** DO NOT<\/strong> under-estimate the time needed & impact on body to do this job. I DO<\/strong> need 2 hours! Spread over the course of the day 3) WEDNESDAY<\/strong> 6:30<\/strong> Dine out or take-away, choose on Tuesday night FORTNIGHTLY 1 fn – Jan does 2hr clean then tea, cake & chat 8:45<\/strong> Before Jan arrives, 35 minutes limit, I firstly do our bedroom – dust, wipe, polish all surfaces & nicknacks in all rooms – brush venetian blinds & curtains. OR<\/strong> do ONE<\/strong> bigger job – polish wood – jiff 9:30<\/strong> 2 hours Jan vacuums carpets & floorboards, cleans toilet & shower & wet mops floors, Enyo mirrors, stainless steal etc\u2026 4) THURSDAY<\/strong> Hair washing + (10 mins of holding dryer above shoulders is hard on body & hands it’s fatiguing) Take a breather afterwards, Friend arvo (may need to make other arrangements for hair) Empty internal bins for Friday’s pickup, and re-line each bin. MONTHLY<\/strong> 1st Thursday of each month Greg has Board Meeting until 8pm. I have to organise my dinner TWO MONTHLY<\/strong> 10.00am hairdresser<\/p>\n\n\n\n
5) FRIDAY<\/strong> Slow cook day 2nighters or more – curry, casserole, pie\u2026 Thursday night, Greg do PNB part of recipe<\/p>\n\n\n\n
[GM: WWF = Words With Friends of her iPad (Trenna was really good at it)<\/em> PNB = Prepare the Night Before, where I open jars or cans of do some of the food prep ahead.]<\/em><\/p>\n\n\n\n\n\n\n\n
2017<\/strong><\/p>\n\n\n\n
WEEKDAY ROUTINE<\/strong><\/h3>\n\n\n\n
Revised 9\/01\/17<\/em> A.<\/strong> = ACTIVE E. <\/strong>= EAT 3 HOURLY Breakfast 7:30 – Morning Tea 10:30 – Lunch 12:30, NO Arvo Tea (Don’t fancy it) – Dinner 7:30 O.<\/strong> = OUT R.<\/strong> = RELAXING S.<\/strong> = SITTING N.B.<\/strong> I need to allow 1 hour in the morning after taking heart pills & food B4 I go for a walk or exercise. BUT<\/strong>, I should not do more than about 20 mins of slow activity after that hour or I will become too fatigued! W. <\/strong>= WALK X.<\/strong> = EXERCISE<\/p>\n\n\n\n
MY DAY BEGINS<\/strong> A.<\/strong> 15 mins<\/strong> Greg wakes me, I get up dress & wash. X.<\/strong> 5 mins<\/strong> Double heel, toe – bike ride – L&R leg side stretches while doing eye lids hot flannel exercise & massage. Wash & moisturise face. Put eye drop in right eye while doing kiss\/smile exercise. 7:30<\/strong> S & E. 30 mins<\/strong> Breakfast + Heart & Osteo tabs. We discuss & organise our day, lunch & dinner. A.<\/strong> 7 mins<\/strong> Wander together in the garden, pinch prune, remove dead leaves, harvest, do general check. A.<\/strong> 6 mins<\/strong> Brush\/floss teeth & open up the house, rooms, blinds\u2026 8:45 WALK\/EXERCISE<\/strong> A.<\/strong> 6 mins<\/strong> Change into walk\/exercise gear, set up or lock up. ALTERNATE DAYS<\/strong> W.<\/strong> 20-30 mins<\/strong> Go for walk around suburb or inside\/outside if weather or body not permitting. OR<\/strong> X.<\/strong> 40 mins<\/strong> OSTEO PROGRAM – floor inc. hand weights, sit, step balance, stand assist, freestyle, standing hand weights S. & A.<\/strong> 15 mins<\/strong> Take a breather after walk\/exercise, change, pack up gear\u2026 Update diaries. 9:30 DAILY HOUSEWORK<\/strong> A.<\/strong> 26 mins<\/strong> 6 mins)<\/strong> LOUNGE<\/strong> Tidy the lounge, plump the cushions, straighten the couch, change TV mag to today’s viewing, sort out & straighten up remotes. Clear, sort & attend to mail trolley items. 6 mins)<\/strong> DINING<\/strong> Clean & stack dining table placemats, clear table, hand wipe tablecloth & straighten chairs. 9 mins)<\/strong> KITCHEN<\/strong> Clean up coffee machine nook & hand wash & dry coffee making utensils. Wipe & put away other dishes or stack dishwasher\u2026 Wipe over sinks. Clear & wipe over bench-tops, get out water bottle & glass & set up my ‘up-stand prep-bench office’. 5 mins)<\/strong> BEDROOM<\/strong> Make bed, tidy shoes, hang clothes 8:45<\/strong> S. 30 mins PAPERWORK<\/strong> Check & update diary & calendar, emails & fb, send or reply to posts etc. & sort\/do other paperwork, attend to appointments 9:20<\/strong> S. & A.<\/strong> 30 mins<\/strong> Take a breather, prep morning tea A.<\/strong> 30 mins Day \u2018extra\u2019 activity stuff. 10:30 R.<\/strong> 15 mins MORNING TEA BREAK<\/strong> Tea, nuts? Downtime, so no stressful stuff now, leisure time. 11:50 S. & A.<\/strong> 40 mins<\/strong> Catch breath after exercises then do job\/project which requires both sitting & active time\u2026 scanning photos\u2026 12:30 <\/strong>Take pills S. & A<\/strong>. 15-30 mins<\/strong> Prep lunch 1:30<\/strong> E. & R.<\/strong> 60 mins<\/strong> LUNCH BREAK<\/strong> & after relax, play a game WWF, watch French News\u2026 2:30<\/strong> FRENCH SPEAK<\/strong> – iPad & relax as I go. Allow time for, or make friend calls 3:00<\/strong> Do current project or hobby 4.:00<\/strong> A.<\/strong> 15 mins SHOWER N.B.<\/strong> Painful on hands & feet not stable, heavy going for heart! Grab clean undies, put bath mat on floor tiles, shower cap on, carefully get Sorbolene out from under vanity cupboard & put in shower. Undress, shower carefully & gently towel dry. Dress, brush hair, put dirty clothes in laundry drawer. A.<\/strong> 5 mins <\/strong>Set the table. S.<\/strong> 60 mins<\/strong> Take a breather, play WWF, check out fb or catch up with diaries. 6:00<\/strong> Greg usually arrives home now. Heart pills We both have a breather. 6:30<\/strong> Check TV – record, delete, add, alter times of programs – watch TV news 7:15<\/strong> Dinner + Osteo Pills + chat catch-up with our day 8:00 pm – Bedtime:<\/strong> Unless I am going to an event or dining out, I do minimal activity until bedtime. 8:15<\/strong> Watch TV (Mostly sitting but must get up & move from time to time) 9:30<\/strong> Take Pain Management pills 10:45<\/strong> Do teeth, go to bed! DAILY EXTRAS<\/strong> 1) MONDAYS<\/strong> A.<\/strong> 10 mins<\/strong> Swap tablecloth, kitchen towels & napkins and, as required, oven mitts, aprons & toilet mat. A.<\/strong> 30 mins<\/strong> WASHING – 3 LOADS MAXIMUM<\/strong> Put out dirty clothes, sort into 3 piles. Load washer, unload when done, set up clothes airers, sort & de-wrinkle items & hang out. A.<\/strong> 30 mins<\/strong> PUMP PACKS & SOAP<\/strong> Clean the dispensers, especially the nozzles and top-up liquid soap & moisturiser pump packs in bathroom, kitchen, laundry. Wash laundry soap tray & wipe over laundry trough & bottles. A.<\/strong> 5 mins<\/strong> Little vac floor tiles & floorboards. 2) TUESDAYS<\/strong> A.<\/strong> 20 mins<\/strong> Tumble dry towels, sort, fold & put away all washing. O.<\/strong> (W & S)<\/strong> 2 1\/2 hours<\/strong> Class, club, Mahjong ALTERNATE FORTNIGHTS<\/strong> (Non Jan cleaning week) A.<\/strong> 30 mins<\/strong> Liquid feed garden – 5 buckets A. & S. 60 mins<\/strong> Fortnightly dinner menus ** DO NOT<\/strong> under-estimate the time needed to read, research & select PNB recipes. This impacts on my body & eyes – fatigue sets in! I DO<\/strong> need to spread over the course of the day (Jan week) A. 15 + 15 mins<\/strong> Dust, wipe surfaces. I firstly do our bedroom – dust, wipe, polish all surfaces & nicknacks in all rooms – brush venetian blinds & curtains. OR<\/strong> do ONE <\/strong>bigger job – polish wood – Jiff ** After dinner, choose take-away or restaurant for Wednesday. 3) WEDNESDAY<\/strong> 6:30<\/strong> Dine out or take-away, choose on Tuesday night FORTNIGHTLY<\/strong> 1 fn – JAN does 2hr clean then tea, cake & chat 8:45<\/strong> Before Jan arrives, 35 minutes limit, I firstly do our bedroom – dust, wipe, polish all surfaces & nicknacks in all rooms – brush venetian blinds & curtains. OR<\/strong> do ONE<\/strong> bigger job – polish wood – jiff 9:30<\/strong> 2 hours<\/strong> Jan vacuums carpets & floorboards, cleans toilet & shower & wet mops floors, Enyo mirrors, stainless steal etc\u2026 4) THURSDAY<\/strong> A.<\/strong> 1 hour<\/strong> Hair washing + (10 mins of holding dryer above shoulders is hard on body & hands it’s fatiguing) R.<\/strong> 15 mins<\/strong> Take a breather afterwards A.<\/strong> 10 mins<\/strong> Empty internal bins for Friday’s pickup, re-line each bin TWO MONTHLY<\/strong> O. (W & S)<\/strong> 60 mins <\/strong>10.00am hairdresser<\/p>\n\n\n\n
5) FRIDAY<\/strong> Slow cook day (2 nighters or more) curry, casserole, pie\u2026 Thursday night, Greg do PNB part of recipe Friend arvo (may need to make other arrangements for hair)<\/p>\n\n\n\n\n\n\n\nTrenna always saw the value in taking some time to have a chat. Here she is with her sisters in our loft, which looks over the kitchen. 15 April 2017.<\/figcaption><\/figure>\n","protected":false},"excerpt":{"rendered":"
Weekday Routine 2016 and 2017 Intro by Greg, and then Trenna Among the documents on Trenna’s iPad there are two called “Weekly Routine”. One is labelled “2016” and the other “2017”. It is actually not quite as pernickety as it seems. In this post I will reproduce both of them. In them Trenna goes into […]<\/p>\n","protected":false},"author":1,"featured_media":2040,"comment_status":"open","ping_status":"open","sticky":false,"template":"templates\/template-full-width.php","format":"standard","meta":{"nf_dc_page":"","_monsterinsights_skip_tracking":false,"_monsterinsights_sitenote_active":false,"_monsterinsights_sitenote_note":"","_monsterinsights_sitenote_category":0,"_jetpack_memberships_contains_paid_content":false,"footnotes":""},"categories":[13,79,48,24,504],"tags":[61,90,267,268,269],"post_folder":[233],"class_list":["post-2018","post","type-post","status-publish","format-standard","has-post-thumbnail","hentry","category-2010s","category-coping","category-ipad-knowledge","category-marfan","category-medical","tag-61","tag-90","tag-daily-routine","tag-organisation","tag-schedule"],"yoast_head":"\n
To Feel Able - Trenna Mahney<\/title>\n<meta name=\"description\" content=\"Two documents from Trenna Mahney's iPad reveal the level of detail she needed to plan her day to cope with her failing health.\" \/>\n<meta name=\"robots\" content=\"index, follow, max-snippet:-1, max-image-preview:large, max-video-preview:-1\" \/>\n<link rel=\"canonical\" href=\"https:\/\/www.trennamahney.com\/testing\/to-feel-able\/\" \/>\n<meta property=\"og:locale\" content=\"en_US\" \/>\n<meta property=\"og:type\" content=\"article\" \/>\n<meta property=\"og:title\" content=\"To Feel Able - Trenna Mahney\" \/>\n<meta property=\"og:description\" content=\"Two documents from Trenna Mahney's iPad reveal the level of detail she needed to plan her day to cope with her failing health.\" \/>\n<meta property=\"og:url\" content=\"https:\/\/www.trennamahney.com\/testing\/to-feel-able\/\" \/>\n<meta property=\"og:site_name\" content=\"Trenna Mahney\" \/>\n<meta property=\"article:published_time\" content=\"2022-05-10T16:01:00+00:00\" \/>\n<meta property=\"article:modified_time\" content=\"2022-07-12T14:42:37+00:00\" \/>\n<meta property=\"og:image\" content=\"https:\/\/i0.wp.com\/www.trennamahney.com\/testing\/wp-content\/uploads\/2022\/05\/26E517FB-B6FE-496A-84E1-3EEB1D6B5544.jpeg?fit=1200%2C900&ssl=1\" \/>\n\t<meta property=\"og:image:width\" content=\"1200\" \/>\n\t<meta property=\"og:image:height\" content=\"900\" \/>\n\t<meta property=\"og:image:type\" content=\"image\/jpeg\" \/>\n<meta name=\"author\" content=\"Greg\" \/>\n<meta name=\"twitter:card\" content=\"summary_large_image\" \/>\n<meta name=\"twitter:label1\" content=\"Written by\" \/>\n\t<meta name=\"twitter:data1\" content=\"Greg\" \/>\n\t<meta name=\"twitter:label2\" content=\"Est. reading time\" \/>\n\t<meta name=\"twitter:data2\" content=\"9 minutes\" \/>\n<script type=\"application\/ld+json\" class=\"yoast-schema-graph\">{\"@context\":\"https:\\\/\\\/schema.org\",\"@graph\":[{\"@type\":\"Article\",\"@id\":\"https:\\\/\\\/www.trennamahney.com\\\/testing\\\/to-feel-able\\\/#article\",\"isPartOf\":{\"@id\":\"https:\\\/\\\/www.trennamahney.com\\\/testing\\\/to-feel-able\\\/\"},\"author\":{\"name\":\"Greg\",\"@id\":\"https:\\\/\\\/www.trennamahney.com\\\/testing\\\/#\\\/schema\\\/person\\\/437d5856636118b18ddd19120d639127\"},\"headline\":\"To Feel Able\",\"datePublished\":\"2022-05-10T16:01:00+00:00\",\"dateModified\":\"2022-07-12T14:42:37+00:00\",\"mainEntityOfPage\":{\"@id\":\"https:\\\/\\\/www.trennamahney.com\\\/testing\\\/to-feel-able\\\/\"},\"wordCount\":1840,\"commentCount\":2,\"image\":{\"@id\":\"https:\\\/\\\/www.trennamahney.com\\\/testing\\\/to-feel-able\\\/#primaryimage\"},\"thumbnailUrl\":\"https:\\\/\\\/i0.wp.com\\\/www.trennamahney.com\\\/testing\\\/wp-content\\\/uploads\\\/2022\\\/05\\\/26E517FB-B6FE-496A-84E1-3EEB1D6B5544.jpeg?fit=1200%2C900&ssl=1\",\"keywords\":[\"2016\",\"2017\",\"daily routine\",\"organisation\",\"schedule\"],\"articleSection\":[\"2010s\",\"Coping\",\"iPad Knowledge\",\"Marfan\",\"Medical\"],\"inLanguage\":\"en-US\",\"potentialAction\":[{\"@type\":\"CommentAction\",\"name\":\"Comment\",\"target\":[\"https:\\\/\\\/www.trennamahney.com\\\/testing\\\/to-feel-able\\\/#respond\"]}]},{\"@type\":\"WebPage\",\"@id\":\"https:\\\/\\\/www.trennamahney.com\\\/testing\\\/to-feel-able\\\/\",\"url\":\"https:\\\/\\\/www.trennamahney.com\\\/testing\\\/to-feel-able\\\/\",\"name\":\"To Feel Able - 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